It has been a few months since my mental health declined rapidly. So where am I at now? Well let me fill you in...
Firstly, my Psoriatic Arthritis has been diagnosed and treated. I am currently having blood tests every six weeks to see how my body is tolerating my new medication, and while it has made a huge difference, I am still a way off remission. However I am hopeful of reaching remission and being pain-free in the next 6 months. My pain levels at the moment are tolerable though, and don't really affect my ability to walk through this world.
My mental health is very stable. I take an anti-depressant and a mood stabiliser. I keep a diary of my mood each and every day. I am pleased to say that every day for the whole month of August has been recorded as being a good day, despite is moving house and being frazzled and exhausted. To compare, in April a good day was a rarity.
I have started studying a Cert III in Health Services Assistance, and am looking at returning to the workforce in the next week if all pans out as I hope.
Thank you to everyone who has supported and loved me through my darkest hours ❤️
Following my fight against major depressive disorder, PTSD and generalised anxiety disorder. Spent time at Belmont Hospital and am on the road to recovery. Hopefully.
Monday, 21 August 2017
Sunday, 4 June 2017
Update!
It's been a while since my last post. Truth is, not a lot has been happening. Hopefully June will see things improving and resolving.
This Tuesday I have an appointment with my psychiatrist. First in a while. While I haven't felt crushingly low I certainly am not out from the cover of depression and anxiety. I'm chewing Newlactil like Tic Tacs. I am not sure if the Lithium isn't working or if I just need something else for the depression part. It has stabilised my moods, but at "meh" level. I kind of want more than meh.
Oh Thursday I am off to see the Rheumatologist to follow up from my MRI. I am anxious but looking forward to a diagnosis and a way to move forward with my life. I need to feel like I'm part of the big picture, not just a person stuck at home who isn't even very good at doing housework. I want a job, I want a career, I want to make a decent financial contribution towards my family life.
One thing I have noticed is that people don't seem to want to talk to me about how I'm doing any more. Most people seem happy to just not bring up the subject of my health issues. Is it because it makes them uncomfortable? They don't know what to say? I'm not sure what it is but it makes me feel very lonely. All I want is for someone to contact me to catch up for coffee and see how I'm doing.
Tuesday, 23 May 2017
I Have A Diagnosis - Kinda
Hey there you cuties. It has been a while since I've posted. Nothing has really been going on, except cleaning. So what was there to talk about? For those who don't know, I've been sick for a while and running like a hamster on a wheel through a myriad of tests and specialist visits over the past 18 months. It has been very difficult and has affected my physical and mental health.
Today I saw my GP. I was there to have a script renewed when she told me that she had been sent a copy of my MRI results that the Rheumatologist ordered. She stated that while she couldn't give me a definitive diagnosis, the MRI results were indicative of Rheumatoid Arthritis. As it is up to the specialist to diagnose me she isn't able to decide the treatment, so at this stage I am not actively being treated.
While I am thankful for a diagnosis I have to say that I'm not too happy about having Rheumatoid Arthritis. As for you, you're probably wondering what the heck it is. Better Health has a decent little rundown. However, it is basically an autoimmune disease that causes pain and inflammation of the joints, along with fatigue and sleep difficulties. There are also other annoying things like dry eyes, feeling like you always have something stuck in your throat, and the affected joints feel warm. So I can rarely keep my feet under the doona at night.
Once the specialist see's me in June I will likely be put on a disease modifying antirheumetic medication (DMARD). They are pretty full-on, with some serious side effects, but it does mean I may be able to get my life back on track, and could even be able to re-enter the workforce! Yay!
Anyway, that's it from me at almost 1am. I need to try to get some sleep. Please feel free to hit me up with any questions about RA. Or just to chat. Whatevz. ❤️
Tuesday, 16 May 2017
"You're Not Crazy"
Urgh what a busy day. Productive but exhausting, although I think the most productive days do take it out of you. For me it has been a day of medical appointments. Lots of stuff going on there.
First up I had an appointment at the hospital with the pre-op team. I am having some day surgery for a gynaecological issue. After everything else that has been happening with ms lately they wanted me to see the anaesthetist before we committed to a surgery date. We ticked the boxes and talked about the surgery and all of the other boring bits before being sent on our way with a promise that someone will call soon with a surgery date and time.
I went for a little drive to kill some time. An old favourite coffee shop has changed owners so I wanted to see what the new vibe was like. I ordered a coffee and some hummingbird cake because I'm a weak-willed animal. Thankfully the coffee was amazing and filled in for some of the energy I was lacking. The hummingbird cake only served to make the world feel like a better place.
Next up was a drive in towards the city to see a rheumatologist. You can imagine my surprise when this specialist was on time. A novelty. Anyroad I sat in with him for a while. He read my test results, talked about my history, did a bit of a physical exam and then wrote me a referral for an MRI on my foot. Another test. Yay! However the best part was hearing him say "You're not crazy. There is something wrong. We just need to figure out what it is." I've been starting to worry that I am crazy and that this is all psychosomatic.
On my way home I got a call from the hospital asking me to come for surgery next Thursday. For surgery in the fternoon. So I get to fast during the day. I'm going to be so much fun to be around.
All in all it has felt like a day where I am finding some issues on their way to being resolved. It is a massive weight off my shoulders. I just wish we could hurry up and start getting a diagnosis for the $350 for each of these specialist appointments I've been to lately.
Friday, 12 May 2017
Radio Silence
My apologies for the radio silence. There has been a lot going on around here lately. Some good, some not so good. Family stuff has had me down down down, however for the purposes of privacy I will not be discussing this on my blog post. However, I will say that it has been hard and cruel, and I wouldn't wish any of this shit on anyone. So now let's focus on the good!
I received a last minute call to join the DBT (Dialectical Behavioural Therapy) group at Belmont Hospital which started on Tuesday just gone. This came as a massive shock as I was expecting it to be a few months away. It appears that they enrol new people at the beginning of each unit of study. Some people finish, some people begin. Apparently they had someone pull out at the last minute and since I had an open availability they got me in straight up. It's a course that is supposedly really good for people who have borderline personality disorder or bipolar disorder. If I work hard and practice I should find that I get a lot out of it with regards to the way I handle my emotions and how I cope in certain situations. Cross your fingers for me!
This week has been my second week with a singing teacher. I haven't worked with a professional for decades! It has been so much fun doing warm ups, scales, etc. My teacher is actually a music director at a community theatre company, and thinks it is something I should audition for. To say I am excited by this is definitely an understatement. I've always wanted to get involved in community theatre, but my situation as a single parent made that kind of difficult. Thankfully having a supportive husbfriend will make it much easier for me to do this. One of the productions he wants me to consider auditioning for is The Wedding Singer - The Broadway Musical. Yep, The Wedding Singer. As in the Adam Sandler and Drew Barrymore movie. One of my fricking favourites!!!!
Other than that I have just been working hard at keeping my head above water, both physically and emotionally. My chronic pain issues are unrelenting, If I do anything with my hands for more than half an hour they end up with pins and needles that, like Kim Kardashian's booty, just don't quit. This is putting a serious dent into my Mario Kart time. I have an appointment with a rheumatologist in July, but am on the cancellation list so I could possibly get in to see him sooner. I'll try to cross my own fingers for that, but I'm not making any promises.
Holiday time is coming very quickly for my baby and I. We are headed down to the NSW South Coast in August to spend some time with my mum. It's only a quick 10 day trip, and my priority is to see my mum. However, I may arrange a get together at one location and those who can make it are welcome to turn up. It's really hard rally racing around to see everyone that I want to see in such a short amount of time. I will make all arrangements around this on my personal facebook page as August creeps closer.
Dinner is ready, so I'm off to eat my husbfriend's creation and watch The Wedding Singer xx
I received a last minute call to join the DBT (Dialectical Behavioural Therapy) group at Belmont Hospital which started on Tuesday just gone. This came as a massive shock as I was expecting it to be a few months away. It appears that they enrol new people at the beginning of each unit of study. Some people finish, some people begin. Apparently they had someone pull out at the last minute and since I had an open availability they got me in straight up. It's a course that is supposedly really good for people who have borderline personality disorder or bipolar disorder. If I work hard and practice I should find that I get a lot out of it with regards to the way I handle my emotions and how I cope in certain situations. Cross your fingers for me!
This week has been my second week with a singing teacher. I haven't worked with a professional for decades! It has been so much fun doing warm ups, scales, etc. My teacher is actually a music director at a community theatre company, and thinks it is something I should audition for. To say I am excited by this is definitely an understatement. I've always wanted to get involved in community theatre, but my situation as a single parent made that kind of difficult. Thankfully having a supportive husbfriend will make it much easier for me to do this. One of the productions he wants me to consider auditioning for is The Wedding Singer - The Broadway Musical. Yep, The Wedding Singer. As in the Adam Sandler and Drew Barrymore movie. One of my fricking favourites!!!!
Other than that I have just been working hard at keeping my head above water, both physically and emotionally. My chronic pain issues are unrelenting, If I do anything with my hands for more than half an hour they end up with pins and needles that, like Kim Kardashian's booty, just don't quit. This is putting a serious dent into my Mario Kart time. I have an appointment with a rheumatologist in July, but am on the cancellation list so I could possibly get in to see him sooner. I'll try to cross my own fingers for that, but I'm not making any promises.
Holiday time is coming very quickly for my baby and I. We are headed down to the NSW South Coast in August to spend some time with my mum. It's only a quick 10 day trip, and my priority is to see my mum. However, I may arrange a get together at one location and those who can make it are welcome to turn up. It's really hard rally racing around to see everyone that I want to see in such a short amount of time. I will make all arrangements around this on my personal facebook page as August creeps closer.
Dinner is ready, so I'm off to eat my husbfriend's creation and watch The Wedding Singer xx
Sunday, 7 May 2017
Just Get Over It
It's the motto of the people. Just Get Over It. Because a mental illness isn't really an illness. You don't need to diagnose it, or treat it, or beat it. You just need to Just Get Over It.
So many people love to regale me with stories about how they had a hard time after a break up and then they just got over it. They just decided that they weren't going to be sad about it anymore. So they just put their problems away and got on with their life. Hooray!
Unfortunately mental illness isn't like that. It manifests over time. It builds and builds and builds, slowly infecting the rest of your life like the fucking parasite that it is. For me it started as a few years at school, not knowing what your crying about. Moving on to hurting myself with a number of tools. When I reached drinking age it became a new way of hurting myself. Drink til I'm sick. Behave in ways that weren't very kind to myself. My dignity took a battering. I stopped feel proud of myself.
Over the years I have tried to fight it. I have tried to Just Get Over It. It hasn't worked. In fact, I think it has made it even worse. The anxiety grew and grew. The sadness and emptiness deepened. The self hatred got stronger.
Through all of this I have come to realise that I can't beat this. Instead of trying to Just Get Over It I need to treat it. In order to treat it, I need to accept it. Accept that I am going to be anxious. Accept that we are going to get depressed. Accept that we are worthy
Sunday, 30 April 2017
My Bipolar Marriage
It's not easy having Bipolar Affective Disorder and being married. My moods rapidly cycle. It's hard to love someone else when you don't love yourself. Sometimes I have to be selfish and take time out for myself. Sometimes I feel like I can't even function as a human, let alone a wife.
With my moods, at one moment I'm up, the next I'm way way way down. It's hard to live happily ever after when you hit rock bottom and get out of bed. It can be dizzying for my husband when one moment I'm lower than low and the next I'm bouncing around the house wanting to do everything at once. However most often I find myself on the depressed side of my disorder. I can also be the angriest, crankiest bitch when I want to be. My flight response is so ingrained that every other week I've decided it is probably best that I leave the relationship.
It's hard to love your husband when you can't even love yourself. It's a bloody horrible thing to say, but there are days where I feel that there is just not an ounce of love in my body that I just muster to share with anyone. What little I have, I give to my children. Unfortunately sometimes he misses out. That makes me feel like a really shitty person.
There are weeks where I have to take time out to focus on my own mental health, leaving my husband behind to deal with all of the stress and responsibility. This past two months I have been in a psychiatric hospital three times. For a minimum of two weeks at a time. During that time he has had to endure his own issues that have made life harder for him than it should be. What makes me feel even more terrible is knowing that I am not there for him when he needs me most.
Sometimes the illness takes over and I feel like I don't even want to get out of bed. I either start the day not wanting to get out of bed and have to get Husbfriend to look after getting the kids organised for school/care while I stay in bed, or I start the day OK and then find myself in my bed with no way of getting out again. Then he finds that instead of just coming straight home and relaxing, he has to do the child care run to get the baby to bring home to the lazy wife. On these days I am lucky to have showered, let alone made dinner.
However other days I decide that I want to get everyting done at once and I start cleaning every room at the one time. Pull all of the crap out of every room and put it on the dining table. I zip around from room to room doing bits and pieces here and there, only to find that I haven't actually achieved anything much and it is time for dinner and all of the shit that I have piled on the dining table needs to be shoved back in to the rooms they came from and I have wasted a whole day.
Thankfully through all of this I have a kind, loving, caring man who is a pillar of strength in our family. Without him being the person that he is, my marriage would have dissolved a long time ago. I do realise each and every day how lucky I am to be married to a man like him. I'm looking forward to getting this illness of mine managed enough for me to be able to be at least half the wife this amazing man deserves.
Tuesday, 25 April 2017
We Will Remember Them
According to Wikipedia, Anzac Day is a national day of remembrance in Australia and New Zealand that broadly commemorates all Australians and New Zealanders "who served and died in all wars, conflicts, and peacekeeping operations" and "the contribution and suffering of all those who have served". While I was a kid I was acutely aware of ANZAC Day, thanks to having a Grandfather who was the President of our local RSL. We used to call him the Grand Poobah.
My grandfather was the absolute best man I have ever met. For as long as I can remember he was funny and caring, always treating us kids differently, but with no less love for one than the other. He acknowledged our differences and worked with those in the way he played with us. He could be stern, don't get me wrong. If you were too noisy during the News or while he watched is NRL, but the rest of the time he would join in on the fun with us, all while treating both his wife and my mother with the utmost respect. In fact I always swore that one day I would grow up and meet a man like my grandfather and that would be when I knew I'd found the one.
Each year my grandfather would lead the ANZAC Day and Remembrance Day services at our local primary school. He would speak about the War and what it meant. He would speak of the sacrifices the men and women of our country made so that we could live our life with the freedom we have today. I stood tall, spoke clearly, but even as a kid I could hear the undertone of sadness in his voice. This man had lived some shitty experiences to have these kinds of tales. Yet here he stands, speaking to the children in our local area, telling them about the story of the ANZACs and a child-friendly version of what they had to endure.
It wasn't until I got older that I heard the full story of what he had to go through. I haven't asked for permission to tell that side of his story today, however I can say that he suffered immensely as a result. He was given a DVA pension for the PTSD he suffered as a result of what he had to do and see. It was a battle, mind you. He was rejected many times over and had to reapply in ways that ticked all of the right boxes for the Government official to put their APPROVED stamp on it. Seriously, could they not just sit down with these men and women, have a conversation with them, have them meet with a psychiatrist and then just approve it from there? Do we need to reject claims based on administrative errors?
My grandfather lived to the ripe old age of 80. He had a fantastic 80th birthday, surrounded by friends and family. He had been sick for quite some time so we were acutely aware that this could be his last. And we were right. A few short months later he died. He was on life support for a few days, but that was mostly so that his wife and daughters would have the chance to say goodbye.
I miss this man terribly. The memory of him slips in to my mind at the most random of times. None moreso then ANZAC Day and Remembrance Day. So while I do respect the service of the tens of thousands of other men and women who have enlisted in our military, today I mostly think of my grandfather, and how grateful I am that he made it home.
A Conversation With A Friend
Recently I had a conversation with a friend of mine named
Hayley. She had recently had a stay at Belmont Hospital too so I wanted to
discuss her experiences.
A: How did you find your experience there?
H: I think I was more motivated at the beginning than at the
end. Like, I kind of got over it at the end. But going in there I was just
happy to be doing something to help myself. So I kind of felt good about going
in and I felt really good during CBT because it was structured and I felt like
part of the group, because we all got to know each other in that group and it
was a nice group of people to be with.
A: How long were you in there for in total?
H: I was there for four weeks altogether, and two of them
were in CBT. But I found that when CBT finished I felt like I was missing
something. I had to do random groups that I wasn’t as interested in and that
didn’t help me as much.
A: I found a very similar thing. You’d get excited about a new course that you
think is going to be totally amazing, like creative writing. I went there and I
really enjoyed it. So the next time I went I thought it was going to build on
that last stuff, but the second course was exactly the same. I think the even
told the same jokes. Nothing was different. It felt like a waste of my time,
but what else was I going to do with my time, really?
H: I ended up avoiding all of the informational sessions as
I’d done it all in CBT anyway and I wasn’t getting anything out of them. I
ended up going to the mindfulness colouring in and doing the mandalas and
crafts, as it takes your mind off stuff because you’re just focusing on that, which
is good.
A: Speaking of which I went for a walk this morning and took
my Calm The Fuck Down colouring in book with me to do while I had a coffee. It
was lovely. Problem is that I find that with the neuropathic pain in my hand I
have about 20 mins of colouring in ahead of me before I’m done.
H: Have you tried the colouring in apps?
A: No but I have tried the Headspace App (give info about
headspace app)
A: How did you find it when you went home?
H I don’t think I was too much better or worse. I think
there were things I was able to better handle, but there wasn’t a really big
improvement or anything.
A: For me, what I was talking to Trent about it being like
was it being a massive floodgate being opened and all my emotions coming
vomiting out that I hadn’t dealt either properly or at all over the 40 years.
And now that I have done that and come home, I don’t know how to close it, I
don’t know if I’m supposed to close it. But my emotions are wild. And I was wondering
if that was something you’d experienced, if your emotions are more out of
control since going home?
H: Not really. One of my problems is that I don’t feel
enough emotions. I’ve just repressed it enough that there’s not really any
feelings anymore. There is this numb, flat feeling, and that hasn’t changed.
That was something I was hoping would change, to be able to have emotions.
A: That’s the shitty thing. The only day group you can go to
is CBT and once you’ve done that all you’re left with are the individual
sessions, which have usually been covered by CBT or are your arts and crafts, and
mindfulness colouring in groups. You leave hospital an come back, and you can’t
do any of the outpatient programs while you’re an inpatient.
So if your psychiatrist suggested you go back in as an
inpatient again, is that something you’d consider?
H: Yeah I would because I didn’t hate it. It is good to be
able to see the psychiatrist every day, and it is good to be away from the real
world when you’re feeling overwhelmed. I think I would go back in, but not for
as long as for the first time.
A: Do you have a plan to go back in at some point in time in
the near future?
H: It’s not that I don’t want to, it’s just that I don’t
think I need to. I go through cycles for months and then I have a cycle where I
get really bad and I’m not in one of those at the moment. I’m just cruising
along. Not feeling too bad, but not feeling too good either. Just kind of
existing.
A: Did they give you a diagnosis?
H: They gave me a diagnosis of depression, anxiety, BPD and
investigating me for ADHD.
H: People have a view of what a disorder is, or what it
should be, and the reality of that si quite different, especially around the hyperactivity
part. More about fidgeting, not being able to sit still, as opposed to being
manic and uncontrollable.
A: Now you’re doing an outreach program at the moment, is
that correct?
H: I’m enrolled for DBT and there are no places in that as
yet, so in the interm I’m doing an outreach program which has me seeing a
mental health nurse weekly, and then I get a free consult with my psychiatrist.
It saves you having to pay big bucks to see your psychiatrist on the
regular. DBT is a big commitment as it is 2 days a week for 6 months.
N.B Just as a side note, Hayley has recently returned to Belmont to be monitored for a medication change. Nothing to drastic, but it was worth noting in the context of the discussion.
N.B Just as a side note, Hayley has recently returned to Belmont to be monitored for a medication change. Nothing to drastic, but it was worth noting in the context of the discussion.
Sunday, 23 April 2017
Self Care Sunday
It's one thing to focus on the negative mental health state. It's a whole other to focus on the positive side. The self care side.
As a consequence I have decided that Sunday will now be known as Self Care Sunday. Each Sunday I am going to do something good for myself. Something physical, social, emotional. Just something.
So today I had my girlfriend come see me to cut my hair and wax my eyebrows. I joked that my eyebrows were actually caterpillar's who had half digested their dinner. In fact I only half joked. They really did look that way.
I am pleased to state that not only have my hair and eyebrows improved, but my sense of well-being has improved too. That could have been the awesome company too.
While it is important to think about what is weighing you down, it is important to consider what will help us float.
Saturday, 22 April 2017
Aaaaaaaaand We're Back.
On Thursday evening I did something I would never suggest anyone ever do. I attempted to overdose on a fist full of pills. In retrospect it was more an exercise in self-harm. There was no well thought out plan. There was no giving away of my things. There was no note. In a moment of desperation I swallowed a fist full of my pain meds and then decided what a stupid idea that was and immediately notified my husband.
An ambulance was called and within 20 mins or so I was shunted off to the local hospital for observation. The pills I took didn't warrant having my stomach pumped, so that was a good thing. I was under observation for 12 hours and I woke feeling extremely bratty about the fact that my Husbfriend hadn't been there. Later on I found out that he had been there for hours, but I was pretty much incomprehensible by that stage. There was a mere muttering of words and a few brief movements on the bed, but that was about it.
Come Friday morning I was out of the woods and left in a state of extreme drunkenness without the fun of a good few tequila shots with good mates to balance it out. I couldn't walk a straight line. In fact I actually peed on my foot because I couldn't aim on the toilet properly (I don't sit down properly on public toilet seats). Now that I write it down this does sound much like a night out in my early 20s! All jokes aside the hospital contacted Belmont with the request that I be admitted here due to the high risk I was of reoffending, for lack of a better word. There was a lot of discussion between my Husbfriend and my psychiatrist about whether or not I would be admitted or not.
So I was discharged from Ippy hospital around 10am, went home for more sleep, and then was told to be back at Belmont for 2pm. Trying to get me organised was probably akin to getting a belligerent toddler to pack up his toys at bedtime. I was so so so so tired that I found it hard to get my act together to pack my stuff up. Sometime later I had my bag together and we were out the door, making it here somewhere between 2.30pm amd 3pm. Hooray for my time management skills!
My timing was terrible. My doctor left after our appointment and now won't be back until Monday. There are no activities of any value on over the weekend. So I kind of have to find my own way through the weekend. There are nurses here to talk to if I need to, but it isn't the same. Meanwhile I am spending time with another friend who has been admitted, gone for a bit of a walk, did some painting and moped around wondering how the hell I'm going to fix my broken little self.
If you have any tips or tricks, I'd be happy to hear them.
Love and hugs xxx
Wednesday, 19 April 2017
This Little Piggy Goes To Market
This weekend I'm doing my first ever market stall for my business as a Plumeria Independent Distributor. I'm nervous and anxious. I don't like being on my own for hours. I had my kit set up, I have my paperwork printed. I have everything I may need. But I already feel that I am going to fail.
My business is awesome. I sell bath bombs, shower bombs, and other beauty items. Recently I have been buying some items to have on hand. A trestle table has been purchased after doing a practice run on a card table and realising it was a bit too small. I took a photo of my smaller table set up but not the bigger one yet.
My anxiety and fears about this market stall scare me. Usually I use this as fuel for not doing what I was going to do at all. So normally I would stick my head in the sand like an emu, and pretend that the world wasn't happening around me. This time I have my trusty Google Pixel phone, I have my earphones, I have e a backlog of podcasts, and I will be surrounded by yummy food. What could go wrong?
With regards to preparation, I have a black and white version of the catalogue printed. I should go get a colour one done tomorrow. I need a display folder of sorts for that. My business cards arrived today and I have an armful of brochures. Not sure that there is much else I can have done.
Still, that nagging feeling is gnawing away at me. That awful anxiety. I have my meds to take if so need. But I find they make me tkees. I just want to be able to take it through the night.
Looking forward to proving myself wrong a d sharing a pic of my set up and talking about my success.
Sunday, 16 April 2017
Are You OK?
***TRIGGER WARNING***
No. Tonight I'm not ok. My insides hurt, my brain hurts, my heart hurts, my skin hurts, my bones hurt, my everything hurts. My brain hurts the most. Followed by my heart.
My brain hurts because I know the way I act, or overreact comes from a shitty place. But I don't know how to get past it. It keeps ruining relationships for me. It stops me from being happy. It stops me from achieving everything I could possibly have ever achieved.
My heart hurts because it really is still just little Allison. That young girl who learns how to walk on eggshells and to try to not do/say the wrong thing least we released the dragon in my father. Sometimes if we gave him nothing to be angry about he would go looking for it. He would always find it in my bedroom. Clothes shoved under the bed, desk drawer cluttered and not messy. The clothes in my wardrobe may be on the floor of the wardrobe instead. Then the kraken would come cracking. He didn't just use psychological violence. Physical violence was his speciality. The amount of fractures my poor mother suffered are innumerable. Not to me room the territory anguish wondering whether tonight would be the night. And if it was my sister and I would argue about whose turn it was to get in the middle of them.
My skin, bones and everything hurts because of my stupid undiagnosed illness. I keep losing feeling in my fingers in both hands. The almost burning pain I feel down my spine. The fact that I now often poop my pants unknowingly. Like fucking hell. Haven't we got enough here???
So after having an argument with Trent I jumped in to the car wondering if I would just drive in to something or if I would just go back home. After a call from my eldest asking me where I've gone and when I'll be home, I think I will go home.
Saturday, 15 April 2017
Back Home And Straight In To A Party
I'm tired. I don't mean that I need to sleep I just mean that I'm tired. Everything feels so much like hard work. Eating, talking, moving, breathing. And then we had my baby's birthday to celebrate. How on earth amI supposed to find the energy for this?
Birthday celebrations for Ezzy were fun. We blew up far too many balloons, ate an amazing cake, and chilled out. Although I only ever felt half there. I couldn't be fully present. Part of my brain was always somewhere else. I believed In was such shit parent for not being 100% there on his special day.
It's hard to remember that it isn't me that's a shit. It's my illness. My mental illness is what takes my mind to places that aren't helpful. However I wonder if my medication is working or not. Should it be doing its thing by now? If it was gonna work should I be feeling better than this? I have already taken almost every antidepressant on the market. I'm not sure that there is anything more that I can take. Maybe this is going to be how it is always going to be.
And if it is, well I don't know that I can do it.
Wednesday, 12 April 2017
The Time Has Come To Say Farewell... Again
Tomorrow I pack up my worries in my own bag and smile. Or at least try to. I have so many feels and not all of them are good. How do I cope out there? What will be different? Will these meds work? I feel like these questions are just spinning around in my mind all day long. I get excited. I cry. I get excited. I cry. I feel dead on the inside. I cry. Blah blah blah.
I've come up with a few coping strategies. Exercise being one of them. Yep, you heard me right. I am going to get myself walking. Much easier now that the sun isn't trying to suffocate me every time I step out the door. I am going to walk, chuck in my earphones, listen to music, and zone out. There is also a thing called a worry box. You can either have a physical or metaphorical worry box. If there is a worry I write it down and put it in the box. It then gets dealt with at a particular time of the day. Say 7pm. The rest of the day I don't worry about those things. They get pushed aside to a time that is more convenient. Apparently most of the time people find that the things they worried about are no longer that important.
My attitude needs to be different to what it was last time. I need to stop being the victim. I need to stop running away. I need to stop catastrophising. That is one of my biggest issues. "If you got problem, yo I'll make it a thousand times worse!"does not need to be my mantra. I need to learn to breathe deeper and slower and try to remain focused in the moment. Committing to things is important to. I am doing this Acceptance and Commitment Therapy class on Fridays. I need to commit to that. I am also starting a Cert III in Pathology Assistance in July. So I need to commit to that too. These aren't monumental tasks so I am pretty sure that I can do it. I just have to keep myself motivated. Any tips?
Recently I have begun taking Lithium. It's a mood stabiliser and reminds me of the Nirvana song of the same name. Usually I will read the heck out of the medication list, finding out the side effects, etc. To be honest I think that's made me feel worse. Almost in a psychosomatic sense. However what I do know is that it is used to treat the swinging moods of people with bipolar. So since it seems to be having a good affect on me so far the doctor said that it is a possibility that I have Bipolar Affective Disorder. So now I am on so many meds that I can't believe I have much room left for food. And yet I do!
I'm still waiting to see my doctor for the day, which is a bit annoying since I have been waiting since this morning. I understand he is busy, but I am very busy just sitting around and thinking about how shit I am.
Monday, 10 April 2017
Double Denim Day
Yesterday I had a chat with a friend about her outside view on the private psychiatric hospital that I'm in. We discussed her views before she came to visit, and after she arrived. We also discussed if she would consider admission if the situation were to arise for herself or for her make believe late teens child. We also talk about cheesy bread. A lot.
The worst part about it would have to be the cost. A couple of weeks in a place like this would set you back a couple of thousand dollars. And there are some self funded people here. However with private health funds you are usually covered for psychiatric treatment 2 months after you start yor policy. Please check with a provider and don't take that as gospel. But for anyone who might need some extra help, please look in to it. Private psychiatric inpatient time is vastly different to public inpatient time.
Prior India was under the impression that it would be a lot more clinical. Like, much less nice and comfortable. Originally she didn't think there would be anything nice about
it at all, assuming it would be bare rooms, barred windows, typical movie
type set up. Initially she was concerned she would have to sign in like a jail, behind locked doors. She expected the patients would not appear to be as "normal"as they mostly are. Another thing that struck her was the limited number of staff that are in the ward. There is more free
reign and not as stringent monitoring. I filled her in on the fact that it is up to the doctors about who is monitored how regularly. I am not monitored regularly at all as I am much less of a risk to myself and others. It really isn't possible for me to just organise to sign in and out. The psychiatrist needs to give approval for me to have leave, how often they need to check me, etc. based on risk. Although those on stricter monitoring aren't watched by orderlies in white coats, like they are in the movies. I originally expected it to be more like https://www.youtube.com/watch?v=ioBueVTZ0RM
India admitted to me that she has had some encounters in public mental health as a child
seeing a psychiatrist, but never admitted as a patient at all. When asked if she'd consider being admitted if a health professional told her she would benefit from being hospitalised, would she consider it, she said "Yeah I’d definitely be more inclined to do so. Less afraid. I’d be like wondering where the drugs are at. Hook a sister up! Where’s my sizzler buffet you c*nts are talking
about? I want my cheesy bread!" Prior to having visited the hospital and seen it with her own eyes she originally would have told them to "literally go fuck
themselves. No chance. None."!
What if the time came that she had a teenager sick enough to be here? "Fucking oath. Absolutely." I think that is something that is confronting for both of us as a parent. This isn’t as if it is an unrealistic possibility. Both of us have our own mental health issues, and that does increase the possibility of a child of our own growing up with them too. My stepson said to me “Yeah cool. I will probably need to come stay here myself sometime soon” hahahahaha. I find it frustrating seeing “normal”people out there who don’t come to places like this when clearly they should. And that is where the problem is. People are too afraid because they don't understand the reality.
To India, the place has a nice tone to it. Although the first time she visited and we went to dinner (still no fucking cheesy bread) she felt rather confronted by seeing some of the
people were clearly depressed, or had obvious physical ailments, and those who were sitting alone because they are socially isolated and don’t know anyone or they
are too anxious to sit with others. I must admit that I find the communal style of dining to be quite
difficult and having to sit and eat with people I don’t know. Even after 4 or
so weeks I still find it really awkward to sit across from someone I don’t know. I usually just plug in my earphones and listen to music while I eat.
The worst part about it would have to be the cost. A couple of weeks in a place like this would set you back a couple of thousand dollars. And there are some self funded people here. However with private health funds you are usually covered for psychiatric treatment 2 months after you start yor policy. Please check with a provider and don't take that as gospel. But for anyone who might need some extra help, please look in to it. Private psychiatric inpatient time is vastly different to public inpatient time.
Saturday, 8 April 2017
You know you are in a psych hospital when
There are so many subtle differences in this ward that make you realise the seriousness of what some people go through. These are all related to stopping people from suiciding. Consider this a trigger warning.
Where do we keep our clothes? In a series of shelves. No wardrobe rail. Fold your things and put them away. Stuff that requires hanging, like dresses, you can skilfully manage to get them on the curtain rail if you are tricky enough. There are no coat or hat hooks, so thankfully we don't live in the 1950s.
The bathroom makes me feel really sad. The mirror is made of glass. The hand rails are completely covered over so that nobody can get any material through it.
From the moment I first stepped in to the shower I was so confused. How the fuck do I get the water out. They only have these small things that you have to twist to get the water out. The hot water is that hot that I only need to turn the cold on a smidge. I have my theories about the reason behind this, but I won't delve in to that part.
Here's the shower curtain. It is connected by a strong magnet. You can give it a good tug but any extra weight would result in the connection breaking. The shower rod and anything/one conected to it would collapse to the floor.
The door handles are at an angle. Makes it really hard to open them when you have are.s full of stuff. But...
That is probably enough of the dramatic stuff. Just thought that it was really interpreting (interesting/depressing).
Hope you're having a wonderful weekend x
Friday, 7 April 2017
It's time to ACT
It's time to ACT and that time is now. Well I say no I mean in 4 hours time. To say I'm a little nervous is an understatement. However as Vincent van Gough once said "what would life be like if we had no courage to attempt anything". So here I am, awake too early. I've been outside to vape, taken some pain meds and have started on my water for the day. All I have to do now is wait for breakfast and my day can really kick off.
I probably should explain what ACT is, for this who don't know. It is an acronym for acceptance and commitment therapy. Put simply it teaches us to accept what is out of our personal control., And commit to action that improves and enriches your life. A very good friend of mine is a psychologist who has discussed ACT with me before. She put me on to a book called The Happiness Trap by Dr Russ Harris. It is a really good starting point if you want to start out.
Yesterday was a bit of an up and down kind of day. I spoke to a facilitator for another program called dialectical behaviour therapy (DBT), to see if I would be a good candidate and to put me on a wait list. I had no idea what it even was, but I will get in to that soon. My pain levels are high. If anyone can explain how I can wake with two dead arms when I sleep on my back I would be forever grateful. I went to the meds window to ask for meds only to found out that I am on restricted endone of 2 a day but you can't get any outside of a 24 hour window. GAAAAAAH! Thankfully I have a visitor soon (Husbfriend) and I am looking forward to his face.
Husbfriend will be on his way soon and I cannot wait to see his handsome face. He really is my number one husband. We are going to meet up after I go to the gym and then have a cofee before we see my psychiatrist together. Fingers crossed he doesn't tell Trent to run from me and never look back!
I had mentioned DBT earlier so thought I'd give some info about that. Basically it is a form of therapy for those of us with Borderline Personality Disorder (DBT). IT is a skills based program to assist participants to deal with intense emotions and to manage self harming behaviours. It is pretty bloody hardcore as far as therapy goes. I think the closest class will be in May or June, so we will see.
Home tomorrow. Yippee. The doctor has given me permission to go to home so I can take little man to his swimming lessons and probably do some housework. I also need to plan his little party so that should be exciting.
I probably should get up and get at it. Need to get dressed in my Active Wear. Ciao for now.
I probably should explain what ACT is, for this who don't know. It is an acronym for acceptance and commitment therapy. Put simply it teaches us to accept what is out of our personal control., And commit to action that improves and enriches your life. A very good friend of mine is a psychologist who has discussed ACT with me before. She put me on to a book called The Happiness Trap by Dr Russ Harris. It is a really good starting point if you want to start out.
Yesterday was a bit of an up and down kind of day. I spoke to a facilitator for another program called dialectical behaviour therapy (DBT), to see if I would be a good candidate and to put me on a wait list. I had no idea what it even was, but I will get in to that soon. My pain levels are high. If anyone can explain how I can wake with two dead arms when I sleep on my back I would be forever grateful. I went to the meds window to ask for meds only to found out that I am on restricted endone of 2 a day but you can't get any outside of a 24 hour window. GAAAAAAH! Thankfully I have a visitor soon (Husbfriend) and I am looking forward to his face.
Husbfriend will be on his way soon and I cannot wait to see his handsome face. He really is my number one husband. We are going to meet up after I go to the gym and then have a cofee before we see my psychiatrist together. Fingers crossed he doesn't tell Trent to run from me and never look back!
I had mentioned DBT earlier so thought I'd give some info about that. Basically it is a form of therapy for those of us with Borderline Personality Disorder (DBT). IT is a skills based program to assist participants to deal with intense emotions and to manage self harming behaviours. It is pretty bloody hardcore as far as therapy goes. I think the closest class will be in May or June, so we will see.
Home tomorrow. Yippee. The doctor has given me permission to go to home so I can take little man to his swimming lessons and probably do some housework. I also need to plan his little party so that should be exciting.
I probably should get up and get at it. Need to get dressed in my Active Wear. Ciao for now.
Wednesday, 5 April 2017
What TF Is A Personality Disorder?
I've been diagnosed with a personality disorder. Rather unceremoniously too (no bells, whistles, parades or even a luncheon). My psychologist called my psychiatrist to call about me, considering I was a bit of a suicidal, self harming mess. When she got off the phone she said to me "You didn't tell me that you've been diagnosed with borderline personality disorder". WELL THAT'S BECAUSE I DIDN'T KNOW!!! But what TF is a personality disorder? How do they come about? What does it mean? Please tell me there is a treatment for it!
Personality disorders aren't as horrific as they first sound. It doesn't mean that you've got a shit personality, or that you are like a malfunctioning robot. No steam is going to come out of your ears and you wont lost a spring or pop rivet. Personality disorders are actual mental disorders that cause suffering. It is basically a long term pattern of behaviour which makes it difficult to function on the daily. I'm hoping it provides me with the perfect excuse for never making my bed ;) But seriously it can make it hard to sustain a job and form a positive relationship in the long term. It can be tricky to recognise that you have a borderline personality disorder, which leads to people not receiving the best kind of care they can get. They go hand in hand with other forms of mental illness, like depression and anxiety, so usually we just try to treat those and feel like we keep failing.
Personality disorders do come in many different packages, so my disorder my not look the same as yours might. There are three main groups of personality disorders. The first group of disorders are usually described as being odd or eccentric. These include paranoid personality disorders, schizoid personality disorder, and schizotypal personality disorder. The next group are for the emotionally unstable, dramatic, and/or impulsive (it's like they know me!!!). These disorders include antisocial personality disorder, histrionic personality disorder, borderline personality disorder, and narcissistic personality disorder. The third package stores avoidant personality disorder, obsessive-compulsive personality disorder, and dependent personality disorder.
The causes of personality disorders are not well understood. There is a link between genetic factors and early environmental factors. There is no single gene involved in causing someone to develop a personality disorder. However people with personality disorders (particularly those such as borderline personality disorder) do generally come from unstable childhood homes. These homes usually have a high rate of childhood trauma, abuse or neglect. It comes from a complex interaction of negative early life experiences and genetic factors, as well as a lack of positive caregiving from one or both parents in early childhood can have a negative impact on personality development.
Personality disorders are next to impossible to manage on their own. If you think you fall in to the category of possibly having a personality disorder then the first step is to go to your local GP, but also jump on the web page for Black Dog Institute, which is an amazing resource. Don't just settle for any old Dr Nick Riviera. Find the one that is right for you. The one that listens and does what needs to be done in partnership with you. They can refer you to a psychiatrist who is able to give you an actual diagnosis, and who will also be able to link you in with a plethora of resources.
One type of therapy are psychotherapy courses, which are meant to provide a better long term solution than medication. These courses include cognitive behavioural therapy, dialectical behaviour therapy, and acceptance and commitment therapy. These require a commitment as they usually run over a number of sessions. However the information you can get from them is invaluable. They are offered through psychiatrists, or psychologist. Either will be able to help you with each.
Medication is such an individual thing. I have tried many a form of antidepressant and anti anxiety meds. I'm currently taking Valium and Neulactil for anxiety. The doc has recently started me on Lithium. I don't know a lot about it at the moment as I don't want to read too much in to the negative side effects. Otherwise you can be guaranteed I will freak out about having every single one of them. Just know that the first medication may not work. You may go through ten or so meds until you find the right one. But just stick with it.
Understanding you have, and then acting on your illness is the first step. And it is a bloody big one. If think you may have a personality disorder and you want to do something about it, full props to you,my friend. Without the right help you can continue down a path of a long-term and pervasive pattern of thoughts, emotions and behaviours that cause distress and interfere with your ability to cope with much of what life has to throw at you. There are many ways to cope. It's just a matter of finding the right ones.
Sending love to you all <3
A lapse or a relapse?
I'm back in hospital. Things didn't turn out the way I had expected. These things included my health, my brain, my general symptoms and my inability to feel safe at home. I was at a point where I would have hurt myself or run.
On Monday I had an appointment with my ortho spine specialist. Originally anticipated an appointment to discuss my surgery. He looked at my MRI results and figured that surgery would not do nahzhing. So now I'm back where I was 12 months ago with no idea of what's wrong with me, with hands that ache and go numb, often being unusable. I now hove ankles that sting when I walk, and hips that don't lie about how painful they are. So apparently I finally am getting the rheumatologist referral that I asked for months ago.
After absorbing this information about my health and pain I figured that I wasn't too keen on spending possibly the rest of my life like this. I started formulating an "exit plan". I felt really unsafe and anxious. So then I popped Valium and neulactil like they were lollies just to try to chill out. My psych and GP figured I needed hospital. Belmont doesn't do an Emergency section so I would have to go via the public system. So we skipped Ipswich and headed in to Royal Brisbane Hospital.
When we arrived they checked me in and quickly whisked the crazy lady out of the waiting room, only to find myself in another waiting room. I waited around 2 hours on my own before they brought food around. What they didn't factor in was the 5 anti-anxiety pills that I had taken just a few hours earlier. I was so damn tied. Needless to say that by the time they night dinner around halfway through the delicious meal of dried silverside with a side of ugly vegetables that were worth of my digestive tract, I fell asleep. My plate slipped and ended up as part of my clothing ensemble. Thankfully black leggings go with EVERYTHING! I asked for a bed but the logos said no. I had to be seen first. When they finally did offer me a bed I felt as welcome as a cold sore on formal night. Their preference was that I spend the night with my family and see my psychiatrist the next day.
Psychiatrist day came. Yippee! Finally I'd get the help I needed to keep me off the proverbial ledge. He pushed for me to stay at home. I told him if he did not admit me I would go to Toowong hospital and ask to be admitted. Finally he relented and here I am, in my own room and everything.
So here I am. With more to write once my hands feel better and it isn't 4am.
Hope you all slept well xxx
Hope you all slept well xxx
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