A Conversation With A Friend

Recently I had a conversation with a friend of mine named Hayley. She had recently had a stay at Belmont Hospital too so I wanted to discuss her experiences.

A: How did you find your experience there?

H: I think I was more motivated at the beginning than at the end. Like, I kind of got over it at the end. But going in there I was just happy to be doing something to help myself. So I kind of felt good about going in and I felt really good during CBT because it was structured and I felt like part of the group, because we all got to know each other in that group and it was a nice group of people to be with.

A: How long were you in there for in total?

H: I was there for four weeks altogether, and two of them were in CBT. But I found that when CBT finished I felt like I was missing something. I had to do random groups that I wasn’t as interested in and that didn’t help me as much.

A: I found a very similar thing.  You’d get excited about a new course that you think is going to be totally amazing, like creative writing. I went there and I really enjoyed it. So the next time I went I thought it was going to build on that last stuff, but the second course was exactly the same. I think the even told the same jokes. Nothing was different. It felt like a waste of my time, but what else was I going to do with my time, really?

H: I ended up avoiding all of the informational sessions as I’d done it all in CBT anyway and I wasn’t getting anything out of them. I ended up going to the mindfulness colouring in and doing the mandalas and crafts, as it takes your mind off stuff because you’re just focusing on that, which is good.

A: Speaking of which I went for a walk this morning and took my Calm The Fuck Down colouring in book with me to do while I had a coffee. It was lovely. Problem is that I find that with the neuropathic pain in my hand I have about 20 mins of colouring in ahead of me before I’m done.

H: Have you tried the colouring in apps?

A: No but I have tried the Headspace App (give info about headspace app)

A: How did you find it when you went home?

H I don’t think I was too much better or worse. I think there were things I was able to better handle, but there wasn’t a really big improvement or anything.

A: For me, what I was talking to Trent about it being like was it being a massive floodgate being opened and all my emotions coming vomiting out that I hadn’t dealt either properly or at all over the 40 years. And now that I have done that and come home, I don’t know how to close it, I don’t know if I’m supposed to close it. But my emotions are wild. And I was wondering if that was something you’d experienced, if your emotions are more out of control since going home?

H: Not really. One of my problems is that I don’t feel enough emotions. I’ve just repressed it enough that there’s not really any feelings anymore. There is this numb, flat feeling, and that hasn’t changed. That was something I was hoping would change, to be able to have emotions.

A: That’s the shitty thing. The only day group you can go to is CBT and once you’ve done that all you’re left with are the individual sessions, which have usually been covered by CBT or are your arts and crafts, and mindfulness colouring in groups. You leave hospital an come back, and you can’t do any of the outpatient programs while you’re an inpatient.

So if your psychiatrist suggested you go back in as an inpatient again, is that something you’d consider?

H: Yeah I would because I didn’t hate it. It is good to be able to see the psychiatrist every day, and it is good to be away from the real world when you’re feeling overwhelmed. I think I would go back in, but not for as long as for the first time.

A: Do you have a plan to go back in at some point in time in the near future?

H: It’s not that I don’t want to, it’s just that I don’t think I need to. I go through cycles for months and then I have a cycle where I get really bad and I’m not in one of those at the moment. I’m just cruising along. Not feeling too bad, but not feeling too good either. Just kind of existing.

A: Did they give you a diagnosis?

H: They gave me a diagnosis of depression, anxiety, BPD and investigating me for ADHD.

H: People have a view of what a disorder is, or what it should be, and the reality of that si quite different, especially around the hyperactivity part. More about fidgeting, not being able to sit still, as opposed to being manic and uncontrollable.

A: Now you’re doing an outreach program at the moment, is that correct?

H: I’m enrolled for DBT and there are no places in that as yet, so in the interm I’m doing an outreach program which has me seeing a mental health nurse weekly, and then I get a free consult with my psychiatrist. It saves you having to pay big bucks to see your psychiatrist on the regular. DBT is a big commitment as it is 2 days a week for 6 months.

N.B Just as a side note, Hayley has recently returned to Belmont to be monitored for a medication change. Nothing to drastic, but it was worth noting in the context of the discussion.

It's time to ACT

It's time to ACT and that time is now. Well I say no I mean in 4 hours time. To say I'm a little nervous is an understatement. However as Vincent van Gough once said "what would life be like if we had no courage to attempt anything". So here I am, awake too early. I've been outside to vape, taken some pain meds and have started on my water for the day. All I have to do now is wait for breakfast and my day can really kick off.

I probably should explain what ACT is, for this who don't know. It is an acronym for acceptance and commitment therapy. Put simply it teaches us to accept what is out of our personal control., And commit to action that improves and enriches your life. A very good friend of mine is a psychologist who has discussed ACT with me before. She put me on to a book called The Happiness Trap by Dr Russ Harris. It is a really good starting point if you want to start out.

Yesterday was a bit of an up and down kind of day. I spoke to a facilitator for another program called dialectical behaviour therapy (DBT), to see if I would be a good candidate and to put me on a wait list. I had no idea what it even was, but I will get in to that soon. My pain levels are high. If anyone can explain how I can wake with two dead arms when I sleep on my back I would be forever grateful. I went to the meds window to ask for meds only to found out that I am on restricted endone of 2 a day but you can't get any outside of a 24 hour window. GAAAAAAH! Thankfully I have a visitor soon (Husbfriend) and I am looking forward to his face.

Husbfriend will be on his way soon and I cannot wait to see his handsome face. He really is my number one husband. We are going to meet up after I go to the gym and then have a cofee before we see my psychiatrist together. Fingers crossed he doesn't tell Trent to run from me and never look back!

I had mentioned DBT earlier so thought I'd give some info about that. Basically it is a form of therapy for those of us with Borderline Personality Disorder (DBT). IT is a skills based program to assist participants to deal with intense emotions and to manage self harming behaviours. It is pretty bloody hardcore as far as therapy goes. I think the closest class will be in May or June, so we will see.

Home tomorrow. Yippee. The doctor has given me permission to go to home so I can take little man to his swimming lessons and probably do some housework. I also need to plan his little party so that should be exciting.

I probably should get up and get at it. Need to get dressed in my Active Wear. Ciao for now.

Home Again Jiggidy Jig

Well, ladies and gentlemen , I am back home!!! It hasn't been an easy time, but I'm getting there. It isn't easy coming from a controlled environment to one that is full of teenagers, a baby, a dog, and three cats. There was so much boy mess, and my senses were on overload. However Husbfriend has done an amazing job of looking after everything in my absence. Couldn't fault him, and wouldn't want to any way. Although the dog did need washing this morning. Smells better now.

The biggest thing I have found since leaving hospital is that a lot of what I brushed off as something else is actually anxiety. I can't take valium forever, so I have started vaping. No nicotine included. Just a vape with something sweet to curb my taste for sweet things. It helps me concentrate on my breathing. I'm a shallow breather naturally, so therefore my oxygen saturation always freaks people out. This is helping with that too. I understand that people will consider this silly, but considering after 10 years I was still tempted to ask for a cigarette this seemed like a better option.

My littlest man had swimming lessons yesterday. Honestly it is one of my most favourite parts of the week. We get to spend some precious time together and he has an absolute blast. This week my beautiful boy levelled up. He is now in Baby Group 3 and I'm super proud. What a way to end a shitty few weeks.

So this week is gonna be a big one. I started with washing the dog this morning, then off for an MRI later in the day (you know people are worried when they squeeze you in on a Sunday day). On Monday I see the spine surgeon and my psychologist, Tuesday my psychiatrist, Thursday I have an appt at Ipswich hospital for preadmission, and Friday. So much for taking it easy.

What do you have on to keep you busy this week?

It's Today! It's Today!

Well, I made it. I got out the other side of my time at Belmont Private Hospital. There is a mixture of joy and anxiety. Getting home vs leaving the comfort of a controlled environment.

Flowers from my beautiful Nanny's garden xx

Most of my morning was spent saying goodbye. I don't want to tag anyone due to their own privacy, but to the Unicorn Pony Queen I want to say thank you. You opened your heart and your arms, hugging me physically and figuratively. I know that life has dealt you a shitty hand, but you are tough enough to make it through. To my lovely Emerald Technology girl, thank you for being you. Thank you for arting with me, for eating with me, for walking with me, and for letting me in to your world. I'm sorry for the recent heartache you have to endure. Let me know if you need a wing man. Then there has been a lovely gentle, soft, kind-hearted Nina, who I don't have on Facebook so she isn't easily recognisable. I am not sure if you realise how far you have come since I first met you. You are an absolute credit to yourself. You are a fighter underneath that gentle facade. So keep fighting. Lastly thank you you roomie. Not only for being an amazing woman who I am glad to call a friend, but for the invaluable advice and support you offered me, particularly on the early days.

Discharge with my psychiatrist went very well. Just ticked the boxes, planned my appointments and my ACT group that I need to attend after here. It feels good to not be cast adrift, so to speak. The nursing station hadn't given me my discharge paperwork the evening before so that delayed my departure. All it took was a quick scribble with the pen on numerous bits of paper and I was good to go.

It was good to see my big boys as soon as I got home. Debbie Did Queensland which meant the kids were home. So I saw their faces as soon as I got in the door. I did feel missed, I must say. Although nobody made me feel more welcome than my pupper. Renly of House Barkratheon could barely contain himself. It was a battle between the dog and the baby for my attention. My heart swelled with pride. As we speak I have a cat friend chilling next to me, as close as he can get.

Both of our big boys wanted to attend Youth Group this evening. We dropped them off around 6.30pm and grabbed some Thai takeout for a night alone with the bub. I had the best Thai Green curry that I mixed with some extra frozen vegetables to replace the rice. Oh did I mention I've been doing Optifast for 2 meals a day since last Monday and I have already lost 2 kg? I haven't said? Well I have! Yahoo! But I digress. We fed ourselves and the baby. It was delicious and exactly what dinner after a return from 3 weeks in hospital should taste like.

We did set up the bed in Ezra's room to start a new habit. I lay down with him to watch some Brum reruns on Stan, only for me to fall asleep with him. Apparently I was asleep before him!  Not sure how long he will stay asleep before he cracks a shit, but I don't doubt we will figure it out.

I've dumped my nights worth of beds for the evening so I need to get to work closing my eyes. I don't want to half finishing this post and then fade off in to a series of zzzzzzzz. So I will wish you a goodnight from my own bed, while I try to simultaneously fall asleep and anxiously listen out for my baby boy in his own room. Sweet dreams to those of you still awake before reading this.

Love to you all xxx

The Day Before Tomorrow

Tomorrow is the day. It is a Friday, but it is also the day I am meant to be going home. I am both excited and anxious, but I'm also nervous about this horrific weather delaying my plans. Thanksfully I have my Squirtle to cuddle and remind me of my baby boy, whose nickname is Squirtle.

As many of you have likely heard, Brisbane is in the midst of some rotten weather. Well actually most of South East QLD and North East NSW. The train is too dangerous to drive in at times, roads are closing due to flooding, and we have to run the gauntlet between Carindale and Ipswich, which is around 40 mind for those who have no idea where these places are. Plus there are sharks on the road, so fuck driving alongside a fricking shark with fricking laser beams.

So lets say I make it home. What's next? Well I see my psychologist on Monday, my ortho spine specialist Monday, my psychiatrist on Tuesday, and then start ACT (Acceptance and Commitment Therapy) on Friday I think. There are a whole lot of things to keep me busy during the week, so I am sure I won't have to worry about not being supported after I leave. I am very much looking forward to seeing my big boys, my kitties, and my Renly. I haven't seen much of this lot, so I am desperate for some time with them. Who knows, we might even get to play some Exploding Kittens.

If things don't go to plan, as they sometimes don't, I am able to come back for more intensive therapy. Apparently going home can be a massive anxiety trigger. We live in a pretty controlled environment here. There isn't an abundance of stimulation to make your senses explode. It is all pretty calm. Home, on the other hand, can be complete chaos. Dogs chasing cats, kids not cleaning their rooms, mess, noise, etc etc etc. So not only is there the anxiety that comes from leaving hospital, but there is the anxiety that comes from being in our own daily lives again. When I see my psychiatrist on Tuesday he will assess me and see how I'm going. However readmission is only a phone call away.

The biggest question I've had to ask myself is, where do I go from here? Well I have my ACT group and Psych appts. I want to get to the stage where I have Ezra back home with me out of day care for one day a week so we can go swimming and have fun together. Furthering my education is a big thing for me to pursue, especially considering how many times I've started and failed study due to my self esteem convincing me that I'm totally shithouse. So I am going to work on that in baby steps, starting with an on campus Cert III in something or other. Might as well get an edumacation, right?

Time for me to embrace these medications and go to sleep. I need to put my worries away for another day and see what tomorrow brings.

Lots of love to you all